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Living well with a living will - By Tim Barkley |
"I never want to live that
way" is a common sentiment these days, making reference, of
course, to the late Terri Schaivo. Folks from all walks of
life seem to join in the aversion to being "a vegetable."
The Schaivo case leaves unanswered nearly as many questions as
it brings to light, however. For example, Terri was not "a
vegetable." She responded to changes in her environment and
changes in her company. While she was unable to perform for
herself nearly all of the "activities of daily living," to
borrow a phrase, she was not a vegetable.
Researchers are beginning to understand a condition that has
been coined a "minimally conscious state," or MCS. Persons in
a minimally conscious state are aware of their surroundings to
some degree and, at times, able to respond, as Terri was able
to respond to the arrival of her parents in her room.
Regardless of ability to respond, many folks still feel that
they "don’t want to live that way." They wish to have all
supports removed, and to be allowed to die. Others feel that,
while some supports should be removed, nutrition and hydration
should be retained, reasoning that they "don’t want to starve
to death or dehydrate."
Leaving aside ultimate moral questions, which are debatable at
best, the U.S. Supreme Court most recently in the Cruzan case
ruled that individuals have a liberty interest in determining
their medical treatment in advance by statements that make
clear their intent. State legislatures have passed laws that
they have continuously modified in an attempt to keep up with
the developments in the field, both legal and medical.
A well-drafted medical directive is imperative. Making known
your beliefs and intentions in advance can help you avoid your
own Schaivo case. Whether Terri should have been allowed to
starve to death or not, perhaps the greatest tragedy of the
case was the uncertainty and protracted agony of the matter.
While Maryland has a "default" statute to provide for someone
to make medical decisions for you if you cannot do so for
yourself, it is always best to take affirmative steps to make
your wishes known rather than relying on legislative grace.
Because the law is evolving in this area, and because
different states have different standards for these matters,
be sure your document stays up-to-date and is reviewed if you
move from state to state. If your medical directive is more
than two years old, it should be rewritten to accommodate
changes in both federal and state law that have occurred in
that time.
Many of this writer’s clients have signed the attorney
general’s form of living will, generally presented to them
upon admission to the hospital. This form is defective,
confusing and potentially self-contradictory. Further, it does
not allow for nuanced statements of belief and intent. This
writer advises strongly against relying on that form.
A "living will" is technically a document that instructs your
doctor as to your medical treatment. It is the growing
consensus in the elder law field that a living will is not as
effective as a medical power of attorney. While the former
will provide for instruction, it is not responsive to changing
situations or changes in the law. A medical power of attorney,
in naming an agent to make decisions for you, provides for a
dynamic solution that can adapt to changes in your situation,
medical science and the law. This writer advises clients to
use a medical power of attorney.
Make sure your medical directive is customized to reflect you
as an individual, and that the persons you have named to act
on your behalf understand your most deeply held moral
imperatives, so that they can effectively represent you in
your time of greatest need. Promptly visit with your estate
planning or elder law attorney and make sure that you have
effectively exercised your rights to ensure that your care
reflects your values and beliefs. |